19
Apr

before-and-after-eye-surgery-glasses
 Before and after eye surgery glasses

After getting my eye surgery which un blinded me I developed secondary cataracts which actually made my sight sort of worse than before. It is a common complication. I had the last laser procedure to clear it this past Tuesday (which was also my birthday) and now I’m seeing clearly – with some complications.

This Friday I will be getting my retina checked to make sure everything is OK Then I have to wait 5 weeks to get my final glasses prescription. I have a complication where my left eye sees white concentric rings from light sources in low light. (Parking garage, dim NJ apartment.) It’s when my iris is open the widest. My doctor says that this was the best they could do given the severe deformity I had in my left eye. They can fix that, but it’s a really invasive and risky procedure that no one wants to do on me because of how risky it already was. I am pretty sure I am not going to pursue that option.

If this is the best it gets, it’s still the equivalent of going from blind to Betamax to IMAX. The results are still mind blowingly amazing. I went from a -20+ something to -1. I don’t need eye correction whatsoever to do things in my apartment anymore, such as reading books, and writing this blog post. I only need it for distance – driving and such.

I hadn’t seen color properly for my entire life. I do now, which you can see in this post that shows my art before and after surgery.

I have another good visual example of before and after surgery differences. Check out the purple glasses (my pre-surgery glasses) vs. my post surgery glasses in black. The purple ones didn’t even allow me to see well so I needed help moving about. They also cost about $1000 and a specialist had to make them. The black ones are thin, allow me to see, and cost a normal price.

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Before:

oni_glasses

After:

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I’ve been doing a lot of staring at random things. I’ll be taking a week off in May to just walk around and stare and plants and wildlife. Did you know that orange is really bright? Or that male bluejays are actually blue? There’s pictures on the walls of restaurants…holy CRAP, guys!

I can’t easily describe it but I just start crying at random times because everything looks so beautiful.



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11
Apr

monday-morning-geekery-and-to-do-list
 Monday morning geekery and To Do List

Good morning, Monday!

Now is when I take some time to contemplate what I did yesterday. What worked, what I should change, and create my To Do list for today and this week. Something that I find really important is to critically look at yourself every day and to not keep doing the same bullshit I did before if it’s not working.

IN THE MEANTIME you should register for Intervention: Sci Fi, Fantasy, & Future Media at http://www.interventioncon.com I’ll be releasing information about some of the programming soon.

Joining us this year is:

Gigi Edgley – “Chiana”, Farscape

Chiana Full length Blue

Todd Haberkorn – Voice Actor: “Hetalia”, “Fairy Tale”; Actor: “Spock”, “Star Trek Continues”

Todd Head shot 2

Robert Axelrod – Voice Actor Lord Zedd, Power Rangers

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Pete Abrams – Sluggy Freelance

And of course James and I will be there doing presentations about the arts, marketing, and web design. I have a few secret creative projects that will be revealed soon. 1 thing I am probably going to make my Indie Marketing panel more interactive – and it will be a lot better since I CAN SEE THIS YEAR and I am no longer blind. :D I’m tweaking the format this year to be a bit more interactive.

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I’ll also be looking for people to talk about cosplay and to help folks who are new to cosplay get started or get better. Contact us via the Intervention site if you fit this description of this panel.

Join me tonight at the ReGeneration Who 3 tickets go on sale we will be having an interactive G+ Hangout party.

Hangout starts at 7, tickets go on sale to the general public at 7:30.

But you should register for Intervention now. VIP art and T Shirt designs come out this week – because Tuesday is my last eye surgery and I can see again so I can make things again! :D



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06
Apr

art-before-and-after-the-eye-surgeries-that-un-blinded-me
 Art before and after the eye surgeries that un-blinded me

Yesterday I had the second from the last procedure that removes the last of the cloudiness from my eyes after surgery. This following Tuesday I have the last (hopefully if all goes well) procedure. I’m in shock again at how clear the completed left eye is. My right eye is the eye that I thought was the clearest. Now that eye looks like I am looking through a translucent shower curtain compared to my left eye that has has all of the procedures.

I did 1 piece of art this week. It is the only piece of art that I did after surgery. It was really messed up because it felt like I wasn’t controlling my body. It somehow knew to pick other colors than I normally would have. It picked saturated, opaque colors and favored hard texture building instead of fuzzing everything out with a ton of blending.

How I felt while making the art was surreal to say the least.

Here is some art that I did before surgery. At the bottom of the page is art after most of the surgeries have been completed and given me sight.

Before surgery, while blind:

Now here is what it looks like done after the surgeries are mostly completed. This piece has a small image here because the large one will be given as a download to those who donated to help me have the surgeriesL

Work in progress:

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Final piece:

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anasthesia



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28
Mar

regeneration-who-2-was-another-success-onward-to-3
 (Re)Generation Who 2 was another success! Onward to 3!

Thank you to everyone who came out to (Re)Generation Who 2 this past March 18-20, 2016. This includes the staff, guests, collaborators, and attendees. Every single person gave their all to make this a fabulous weekend and I am incredibly grateful for your support. I would not be able to make these conventions without you. The positive reviews are already flooding in.

We’ve made great strides toward making an all-inclusive, family-friendly during the day space for attendees. I am so proud that our Children’s Programming has already been getting acclaim and press. You can thank Eric and Eta for this wonderful track – that even our guests were overjoyed to participate in!

I am already working to expand what we can offer for next year.

For me the convention starts – ok well – for me the con never ends. I am already planning the 3rd one for months now and so I basically am always working. But as far as deployment goes, my con last from Wednesday to Wednesday. That’s pretty brutal considering my average day during this time is from 5:30AM-1:30AM.

How do I do it? I have help. And coffee. And I wear a dress over running leggings and sleek-looking hiking boots so that I can do literally anything required of me while still looking presentable:

oni dress

I need to get a storage facility in Maryland where the staff is. I live in New Jersey and so we store everything where I live. Well, this meant that on the last day I had to drive 2.5 hours home and unload the entire large panel van myself. Harknell has a bad back and while he did try to do as much as he could, I won’t let him injure himself.

It took 4 hours and by the time I was finished I was talking to the boxes as if they were people. @_@ It was worth it, though!

We have a lot of photos and video being processed, but here are some things from the con that I have right now.

Here is Nick Briggs, the voice of the Daleks and Cybermen, learning ASL:


Nick Briggs, the voice of the Daleks, conquers Baltimore and learns ASL.

A video posted by (Re)Generation Who (@regenerationwho) on

Here is Wendy Padbury pouring tea at the sold out Tea with the Doctor VIP event:


Wendy Padbury is mother at Tea with the Doctor.

A video posted by (Re)Generation Who (@regenerationwho) on

Here is me with MORE BOXES TO LOAD WHEEE:

boxes

Here are some photos taken by Vinny of our 3 days of concerts, panel discussions, celebrity interviews, dance parties, the Davros Variety Hour, and general PARTY TIME. You never know what to expect at (Re)Generaton Who – and that’s because we are always evolving and developing our own content that you won’t see anywhere else – and we accept your suggestions. It’s a full time job, but well worth it for the results:

colin peter nick

dance party

mike kangal dj

dominic glynn concert colin

dominic glynn concert

variety show 2

variety show

rob terry john nick

cat colin nicola

Here is our “So, How Did We Do?” feedback panel at the end of the con. That’s me in the center:

final panel photo by vinny

Thank you for coming out to (Re)Generation Who 2. Thank you for staffing. Thank you for being kind. Thank you for everything. Thank you for being you.

It was our goal to compliment the already amazing fan and con community with our work and we achieved that. I have a very specific vision of using this con to bring families of all types together – and to always support and help all other cons to create a better world for tomorrow with more cons, more fans, and more positive things to enjoy.

I LOL at you if you ask me “if” there will be a 3. I’ll let you know quite soon what the go live date for (Re)Generation Who 3′s registration is.

Here are some things people are saying:

testimonial 3

testimonial 2

testimonial 1

For more photos, join our Facebook Group, follow the con on twitter, and instagram.



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29
Feb

transitioning-from-being-blind-to-not-blind-is-difficult-and-sometimes-upsetting-can-anyone-tell-me-how-to-clean-glasses-properly
 Transitioning from being blind to not blind is difficult and sometimes upsetting; can anyone tell me how to clean glasses properly?

Guys, I’ve been having some difficulties and I am having problems understanding and adjusting to them.

Because of the situation with my eyes going from blind to not blind I’ve been mostly stuck inside since December when I went out for a bit. But before that I have mostly been stuck inside since last September. So that’s about 6 months of being inside a lot and unable to drive.

I went out to Katsucon a few weeks ago and it was great but exhausting. I’m healed from the first part of my eye surgeries and will have the (hopefully) last part of them this April. April 12th is my birthday and also the day of my last procedure so that will be a nice present if it all works out fine.

It’s probably impossible to describe to you all what I am going through. 1 day out at Katsucon made me realize how much easier it is to talk with people now after my first 2 surgeries. My stress level is much lower – until it gets to be too much for me and it skyrockets.

A side effect of the surgery is that I can no longer focus my eyes and immediately went from being able to do that to needing reading glasses. Most people start feeling this at age 45 and have slowly aged into it. Mine was induced – an all at once surprise.

My Doctor of course told me all about his before and I expected it, but my point is that to my brain it was a surprise because it still tries to focus me by reflex. I get headaches a lot. Bad ones.

I have a lot of trouble when the sun is not out which I hope the next 2 procedures will clear up. in dim light I get a 50-100 ft dark “X” that radiates from every light source. I also still have a ring in my left eye that pops up in low light which is incredibly irritating.

But at the same time colors are brighter and even though everything is clouded it’s clearer than it was by a lot.

Interactions with people have always required excessive brain usage before to sort out what was happening. Now it’s easier until my brain gets confused and thinks it should be working harder than it needs to.

Glasses are also a pain in the ass. No matter how hard I try or what spray I use it seems I can’t get my glasses clean and at the same rate I have clouding in my eyes so it’s extra annoying to have 2 levels of clouding. If you know how to actually get glasses really clean please send me an email or comment on my Facebook or Twitter. Sprays and microfiber cloths that they sell seem to leave them still dirty.

I seem to be learning things every day that I didn’t expect would be different. Still I keep thinking every night that I have to remove my contact lenses but I don’t. I can see now. I’m just not quite through the entire process.

I’m working on the art for all of you who donated to me still but I am working a bit slower than usual. As I expected it all probably won’t be done until after (Re)Generation Who this March 18-20 come register and say hello!), which I am also working on and will be our best work yet.

I just can’t wait for all of this eye crap to be over. I feel irritated with some of the things I mentioned above but I also feel like I don’t look like me anymore. You may have noticed less pictures and such up here. It’s because I feel like this is all too much to handle sometimes, I don’t look like me anymore and I just want to disappear. But I don’t plan to.



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